This won’t be a very introspective email—I’m not feeling well. The main update is that my viral numbers have come down, which is encouraging.
Hi Everyone,
I’ve had a lot of people reach out asking how I’m doing—I know I haven’t sent an update this week. Thank you for checking in and for your love and support. Even if I haven’t written or called back, please know it means the world to me.
This won’t be a very introspective email—I’m not feeling well.
The main update is that my viral numbers have come down, which is encouraging. But I still need to stay on the nightly IV infusions until the virus is completely undetectable. Once that happens, we’ll do more testing to see what’s next.
Medically, my lab values—including kidney function—are stable, indicating no significant change at this time.
At the same time, I’m dealing with some tough side effects. I’ve been getting migraines every night that keep me up for hours—possibly from the infusions or the new anti-rejection medication. My neurologist just prescribed a new daily migraine medication yesterday, so I’m hoping that brings some relief.
I’m also managing hand tremors, constant fatigue, and abdominal pain. I sleep and rest a lot throughout the day.
I haven’t been up for much—writing, phone calls, or even small talk. This week, I’m just moving minute by minute, hour by hour, day by day.
Thank you again for checking in and for your continued support. If you’re celebrating Shabbat tonight, Shabbat Shalom. Wishing everyone a restful weekend.
Love, Danielle
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Live your best life’ is no longer about chasing the productivity or optimization that the self-help industry glorifies—it’s about redefining what a meaningful life looks like within my own parameters.
This weekend, my husband Ian and I went shopping for a used RV camper. You might be wondering—where did that come from? In many ways, the story behind the camper ties into how I’ve thought about “living my best life.”
Many of you knew me before my kidney injury. I spent almost 14 years in Tempe and Denver, and my identity was intertwined with my activities—hiking, backpacking, biking, traveling—always on the move. My weekends were filled with road trips, Jewish events, or spiritual trainings. I ran my own business, which gave me a creative outlet. Friends and family would say, “You’re living your best life,” and for the most part, I agreed.
But there was a downside. I felt pressure if I took downtime—like I was giving up on an adventure or productivity.
And even though I did a lot, I also binge-watched TV and scrolled online for hours, feeling guilty that I wasn’t being productive, connected to G-d/spirit, or making the most of life.
It’s not that I don’t agree with “live your best life.” I just find it more nuanced than the way it’s often presented.
The phrase seems to have originated in the early 2000s self-help movement—pushing identity to align with the most optimized, productive, and meaningful version of life. Oprah took it mainstream with her “Live Your Best Life” event in 2010, alongside self-help gurus. Then social media jumped on the bandwagon—watching influencers travel, meditate, and live seemingly perfect lives made it hard to separate truth from appearances and pressure.
Was I seeking real fulfillment, or was I chasing an ideal the self-help industry had sold me?
Then I got sick, and everything flipped. Many of you saw me struggle. I likely had depression, though I kept myself moving—writing, vlogging, playing with my son Barney, seeing friends, attending synagogue, going to therapy, and seeking spiritual mentorship. People told me, “You’re so strong,” “You’re amazing,” “You’re a warrior.” I appreciated it, but inside, I often thought, “I’m just surviving.” I worried—what if I didn’t stay strong? What if I became bitter and curmudgeonly like others I’d known who had endured critical illness? And honestly, I understood why some did. Pain, a failing body, and losing mental faculties sucks. If it weren’t for Barney, there were moments when I told my family I might have chosen hospice.
Being sick comes with the expectation to thrive rather than just survive, to stay positive and push through.
But that expectation doesn’t acknowledge exhaustion, grief, or the simple act of making it through the day. Optimization, productivity, and meaning can be elusive. When I was at my worst, my thoughts and writing—though slowed—were my lifelines to G-d/spirit/the universe.
That, and the love of my family and friends, was all I had. While there was fulfillment in that, there was also grief for the adventurous side of my identity that had been lost. In that space, there was no “best life.” There was just getting through.
Now, I’m a month post-transplant—a huge milestone. I feel a renewed sense of energy and am beginning to think ahead, something I haven’t done in a long time. Ian, my husband, is starting a job at the Naval Academy, which has an RV campground on its campus. His commute of 45 to 75 minutes each way doesn’t seem practical to do daily. We considered an investment property, but the numbers didn’t add up. Then, on a whim, we planned a camping trip for June in Annapolis—only to realize much of our gear had been destroyed in a flood. I suggested renting an RV, but before I knew it, I had fallen into a rabbit hole of research. I learned everything about RVs—quality, materials, brands. And then something unexpected happened: I saw myself reclaiming parts of my identity and going on adventures again.
Camping was one of my favorite things before kidney disease, but the logistics have changed. Public restrooms and showers pose a risk, and any travel I do now must keep me within reach of reputable hospitals. Still, I started picturing local trips, weekend getaways, and moments of joy that once felt out of reach. I imagined waking up in the RV, sipping coffee while watching the sunrise, feeling the crisp morning air.
It wasn’t just about travel—it was about reconnecting with a part of myself that I thought was lost.
I also thought about Barney. I had always envisioned taking him camping, eventually backpacking—introducing him to the outdoors. But now, it’s happening in reverse—he’s the one eager to go outside, looking out the window, waiting for someone to take him walking. Maybe all those hikes while I was pregnant left an imprint on him. And though I may not be the one leading him into nature, it fills my heart that he loves it.
So, we’re buying a used RV. It’s not just for convenience—it’s a reclaiming of the parts of my identity that felt lost. It gives Ian a place to stay near work, but more than that, it opens a door to a new kind of adventure—one that fits within my reality. Our first trip is already planned: Solomons Island in April for our anniversary.
The RV also represents a shift in how I approach identity. It’s not defined by boundless travel, but by honoring the part of me that loves adventure while acknowledging my new reality.
It allows me to be safe, near medical care, and mindful of food safety. It honors my body and its fragility. It lets me research new places, plan new experiences, and maybe even find a community of fellow travelers.
It’s not about chasing a productive, optimized life—it’s about redefining what a meaningful life looks like within my own parameters.
I’m not saying that living your best life is bad advice, but the self-help version suggesting grand adventures, achievement, and optimization doesn’t work for me anymore.
For me, it’s about adaptation and acceptance—finding new ways to connect to God and self, connecting lovingly with others, what it means to give back, exploring my inner world, learning to live with illness, and accepting that parts of my identity might have to waver with physical change. Maybe down the road, adventure will include crossing oceans and scaling mountains, but for now, it’s about micro trips, in new places just a few hours away—making the world feel bigger in ways that are still within reach.
So, here’s to this new little camper—our crash pad, our weekend escape, our window into new possibilities.
With love, Danielle
I love hearing from readers. While I can’t always reply, I do my best to read and respond to every comment and email.
Thanks for reading Pondering Aloud with Danielle Roessle! This post is public so feel free to share it.
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Danielle has been released from Inova Hospital and is on her way home!
Hello All!
I’m thrilled to share that Danielle has been released from Inova Hospital and is on her way home! Her blood levels are excellent and she’s feeling more energized than ever. Perhaps the greatest news of all…..she has no food restrictions! Our girl can go out and EAT!
Below is a picture of Danielle and our angel, Brad, the morning after their surgeries. Brad was able to go home yesterday and is also doing great.
It’s hard to express our gratitude for Brad and his incredible wife, Jillian. While we only met them just this week, they already feel like family.
Thanks again to everyone for your kind words and prayers through this time. You have no idea how uplifting they have been. Hugs to you all!
Jackie (Danielle’s Sister)
I love hearing from readers. While I can’t always reply, I do my best to read and respond to every comment and email.
Thanks for reading Pondering Aloud with Danielle Roessle! This post is public so feel free to share it.
Happy belated Mother’s Day to all the amazing moms! My first Mother’s Day was filled with joy as we celebrated at the beach. Surrounded by family, I cherished the blessings of motherhood. Yet, I also faced the sobering reality of my health, leading me
Happy belated Mother’s Day to all the incredible moms out there! This past weekend was particularly special for me as I celebrated my first Mother’s Day. It was a time filled with joy, family, and some bittersweet realizations. Here’s a glimpse into my weekend and the emotions it stirred.
A Beach Getaway
To celebrate, my family and I headed to the beach. Along with my husband Ian, our baby, and our wonderful nurse Marcy, we enjoyed a delightful weekend. We cooked meals together, went shopping, watched TV, and simply relaxed. The beach provided the perfect setting for us to unwind and cherish these special moments. It was everything I could have asked for on my first Mother’s Day.
The Joy of Motherhood
Being a mother for the first time brought indescribable joy. Holding my baby and celebrating this milestone surrounded by loved ones was a dream come true. This experience reminded me of the blessings of motherhood and how grateful I am for my family. It was a key bucket list moment I had always imagined, and it did not disappoint.
Health Realities and Reflections
Amidst all the happiness, there was also a moment of sobering reflection. As I anticipate an upcoming kidney transplant, I have to face the reality of living with a compromised immune system due to immunosuppressants. Realizing that extensive travel to places like Africa and Mexico might expose me to health risks was heartbreaking. It meant that many of my travel dreams might have to be reconsidered.
Redefining Dreams and Priorities
While this realization was tough, it brought clarity about what truly matters. My health and well-being are now my top priorities so that I can continue to be there for my family. Although I may need to revise my bucket list, I look forward to finding joy in experiences that are safe and manageable. My dream destinations may change, but the essence of those dreams remains.
I love hearing from readers. While I can’t always reply, I do my best to read and respond to every comment and email.
Thanks for reading Pondering Aloud with Danielle Roessle! This post is public so feel free to share it.
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Living with chronic illness turns “How are you feeling?” into a complex question. Chronic pain, low energy, and emotional grief make it difficult to give a simple, positive answer, but I’m learning how.
Living with chronic illness transforms everyday questions into complex emotional and physical challenges. One simple query, “How are you feeling?” often becomes the hardest to answer accurately.
The Difficulty of Explaining Pain
When people ask, “How are you feeling?” it’s difficult to respond concisely. My days are marked by chronic stomach pain, low energy, and the struggle to perform basic tasks. Some days are better, but many feel overwhelmingly worse, making short and positive answers a struggle.
The Emotional Burden
This question also carries a heavy emotional weight. I grieve for my former healthy self, whom I took for granted. Expressing this loss succinctly to others is a challenge in itself.
Balancing Honesty and Empathy
While I strive to be honest about my condition, I also try to avoid burdening others with the full weight of my struggles. I often say, “Today is tough, but I’m managing,” which allows me to be truthful without overwhelming the person asking. This response feels honest yet considerate, providing a middle ground that respects both my reality and the inquirer’s concern.
But overall, I’m doing okay.
I love hearing from readers. While I can’t always reply, I do my best to read and respond to every comment and email.
Thanks for reading Pondering Aloud with Danielle Roessle! This post is public so feel free to share it.
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We celebrated my dad’s 69th birthday with a lively dance party, reflecting on the profound nature of love. I felt deep gratitude for my parents’ unwavering support and the privilege of experiencing such strong, enduring love that sustains us through life.
Today was a truly special day as we celebrated my dad’s 69th birthday. The joyous occasion was marked with a lively midday dance party on my parents’ deck, featuring our little bundle of joy, Barney. It was more than just a celebration of another year of life; it was a celebration of love, family, and the deep connections that sustain us.
The Privilege of Deep Love
As the festivities unfolded, I had an epiphany about the profound nature of love. It’s an incredible privilege to be loved so deeply and to reciprocate that love with equal fervor. Today, my thoughts are especially centered on the love parents have for their children, and vice versa. I felt an overwhelming sense of gratitude for my parents and their unwavering support throughout my life, particularly during the most challenging times of getting sick.
Reflecting on Parental Love
Looking back, I realize how much my parents have been through with me. They’ve endured immense struggles and celebrated monumental victories alongside me. Their love has been a guiding force, providing strength and solace. The intensity of this love is something truly remarkable, and I feel incredibly fortunate to experience it.
The Significance of Expanding Our Hearts
When we allow our hearts to expand and embrace love fully, we open ourselves to one of life’s greatest rewards. In feeling the love emanating from others and letting it permeate our own hearts, we discover an essential aspect of what makes life worth living. This exchange of love becomes a cornerstone of our existence, offering both comfort and purpose.
As the night approaches, I encourage you all to treasure the love in your life. Appreciate the relationships that nurture and sustain you, and always remember the immense privilege of loving and being loved. Have a wonderful night filled with warmth and gratitude.
I love hearing from readers. While I can’t always reply, I do my best to read and respond to every comment and email.
Thanks for reading Pondering Aloud with Danielle Roessle! This post is public so feel free to share it.